Understanding the Educational and Support Needs of Caregivers of Patients Diagnosed with Dementia

Aim: To interview people from all walks of life who care for persons with dementia to understand how they learn about the condition, the challenges they face in accessing services and information, and strategies they’ve developed for resilience.

Overview: A minimum of 18 caregivers were recruited to participate in an interview and 7 healthcare professionals. The participants included caregivers of persons diagnosed with dementia, registered practical nurses (RPNs), case managers, (CMs) and geriatricians.

Results: Our findings will help us to provide the right information and support in the right way at the right time — based on people’s real lived experiences, not just hypotheses.  It’s a privilege to learn from people with such a wealth of wisdom to share, and to see caregiving from the inside out.

Pictured: Medical students Thom Ringer and Matt Wong-Pack

“We’re interviewing people from all walks of life who care for persons with dementia to understand how they learn about the condition, the challenges they face in accessing services and information, and strategies they’ve developed for resilience.  Our findings will help us to provide the right information and support in the right way at the right time — based on people’s real lived experiences, not just hypotheses.  It’s a privilege to learn from people with such a wealth of wisdom to share, and to see caregiving from the inside out.”