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Lived Experience & Alzheimer’s Care
Dr. Alexandra Papaioannou is joined by Phyllis Fehr and Adam Morrison for a conversation that brings lived experience and system leadership together. Drawing on Phyllis’s journey with young-onset Alzheimer’s disease and Adam’s work shaping dementia policy and supports, the episode explores early signs, delays in diagnosis, dignity in everyday life, and what must change so people receive support when it truly matters.
Resources
Find your local Alzheimer Society: https://alzheimer.ca/on/en/about-us/find-your-local-alzheimer-society
Alzheimer Society of Canada: https://alzheimer.ca/en
Alzheimer Society of Ontario: https://alzheimer.ca/on/en
Cognitive Groove: https://www.gerascentre.ca/our-research/cognitivegroove/
iGeriCare:https://igericare.healthhq.ca/en
The Lancet: https://www.thelancet.com/infographics-do/dementia-risk
Helping children understand Alzheimer’s Disease: https://alzheimer.ca/en/help-support/i-have-friend-or-family-member-who-lives-dementia/helping-children-understand-dementia
Ongoing Brain Health Research: https://www.gerascentre.ca/brain-health/
This episode is proudly supported by the CIHR Institute of Aging and the Betty Havens Prize for Knowledge Mobilization in Aging, awarded to Dr. Alexandra Papaioannou. Special thanks to creative directors Dr. Patricia Hewston and Caroline Marr, and strategic director Dr. Tricia Woo.