Caregiver Burden Aspect of TAPESTRY

Aim: To examine the impact of the TAPESTRY (Teams Advancing Patient Experience: Strengthening Quality) approach on the burden of caring for someone with a chronic disease.

Overview: The caregiver burden encompasses the physical, emotional, financial, and social stressors placed on caregivers when caring for a person with dementia. To alleviate the added stress and improve caregiver health, it is suggested that caregivers participate in pleasant activities.

Intervention Components:

  • Older adults aged 70+ living at home
  • Participants are from either site of the McMaster Family Health Team (McMaster Family Practice or Stone-church Family Health Centre)

Preliminary Results:

About 25% of participants self-identified as primary informal caregiver

  • Data collected 
    • Demographics​
    • CB: 4-item Zarit Burden Interview (ZBI)
    • Quality of Life (QoL): EuroQOL five (EQ5D)
    • Social Support (SS): Duke Social Support Index (DSS) 
  • Qualitative interviews regarding the context of caregiving
  • Evidence for caregiver burden among TAPESTRY participants